Lipoedema is a connective tissue disorder mainly found in women and often misdiagnosed as obesity.
As a weight loss and food freedom coach, I’ve spent years helping others on their journeys towards healthier lifestyles and sustainable wellness. My own path has been marked by triumphs and challenges, including a significant weight loss journey over 19 years ago. It wasn’t until that weight loss that I discovered I had lipoedema. The photo shows my legs after weight loss, my top half at this stage was a UK size 8.
Lipoedema, often misunderstood and misdiagnosed, is a chronic condition characterised by the abnormal accumulation of fat, typically in the legs and sometimes the arms. Despite efforts to manage weight through diet and exercise, individuals with lipoedema often find it difficult to reduce the size of affected areas. This is because lipoedema fat is different from regular fat and doesn’t respond to traditional weight loss methods.
Realising that I had lipoedema was both a relief and a challenge. Finally, there was an explanation for the persistent swelling and discomfort in my legs, but there was also a new hurdle to overcome. Understanding the facts about lipoedema became essential in reshaping my approach to health and wellness, both for myself and for those I coach.
Is Lipoedema only found in Women?
Lipoedema primarily affects women, with estimates suggesting that it impacts around 11% of women globally. However, due to underdiagnosis and lack of awareness, the actual number may be much higher. The condition often becomes more apparent during puberty, pregnancy, or menopause, suggesting hormonal factors may play a role in its development.
Living with lipoedema brings a myriad of challenges beyond the physical symptoms. The emotional toll of feeling trapped in a body that doesn’t respond to conventional weight loss methods can be overwhelming. Additionally, the social stigma associated with obesity can exacerbate feelings of shame and self-doubt. It’s crucial to recognise that lipoedema is not a result of overeating or lack of willpower but is instead a medical condition that requires specialised care and understanding.
Treatment
Treatment for lipoedema focuses on managing symptoms and improving quality of life. While there is currently no cure, various approaches can help alleviate discomfort and reduce swelling. Manual lymphatic drainage, compression therapy, and specialised exercises tailored to the condition can all play a significant role in managing symptoms. Additionally, some individuals may benefit from surgical interventions such as liposuction to remove excess fat deposits.
Support and advocacy are essential for those living with lipoedema. Finding a healthcare team knowledgeable about the condition can make a world of difference in managing symptoms and accessing appropriate treatment. Support groups and online communities can also provide invaluable resources and a sense of belonging for individuals navigating their lipoedema journey.
Moving Forward
As a weight loss and food freedom coach, my perspective on health and wellness has evolved significantly since learning about lipoedema. I’ve come to understand that true wellness encompasses far more than just the number on the scale. It’s about embracing self-compassion, finding joy in movement, and advocating for proper care and support for all bodies, regardless of size or shape.
My journey with lipoedema has been one of discovery and empowerment. By sharing my story and raising awareness about this often-overlooked condition, I hope to inspire others to seek the support and resources they need to live their healthiest, happiest lives, lipoedema and all. Together, we can redefine what it means to thrive in bodies that defy societal norms and expectations, embracing our unique journeys towards wellness with courage and resilience.